Tuesday, May 6, 2008

A rough weekend home

Charlie is home; he came home on Friday. It has been a rough weekend. I have to feed Charlie every three hours including through the night with the NG tube and syringe. He was pretty good at sleeping through the night a month ago, so I'm pretty disapointed and tired. There was miscommunication with the doctors which was frustrating, and I was also told that my insurance was not going to cover Charlie's formula which is $60 for a small can that I would go through in a few days. That's now cleared up and insurance is covering it, but at the time, it was frustrating. My car was packed full of stuff, and there was much to do at home. Aubrey made sure to keep me on my toes by vomitting all over Charlie! I wasn't even suppose to bathe him for a few days because they just took out his picc-line that morning. Charlie of course started throwing up on Saturday, and has continued doing it at least once a day including today. I saw a pediatrician yesturday, but he thought Charlie was fine. Oh- there's a diahrea problem too. Did I mention his stuffy nose and cough? Seth was throwing up on Monday too. There is some good news: I've done a lot of laundry and only have five loads left, I have also thrown out all the food that has been going wrotten in our fridge this past month, our mail is now narrowed down to two piles, and the weather has been great! We open the windows and Aubrey got to swing today. Seth also picked some dandelions and made a bouquet for me...how sweet...!
Some people have brought meals, and one night I was the only one that ate dinner, so I haven't really had to cook since we've been home which has been nice.
So I'm tired and grumpy, and I'm going to sleep for 1 hour and then feed Charlie again. Really things are better than it feels like they are right now, but we'll get through it. Tomorrow is another day.


carolyn q said...

I am glad you are home, but reality of it all isn't fun when you are trying to pick up the pieces.
I can imagine how exhausted your feel right now, so I hope that somehow you will be able to get some rest to help recharge you.
Please know that I keep your family in my thoughts and prayers.
Heart Hugs,
Carolyn Quigley

Christina said...

I am thinking of you guys. I hope things mellow out soon. It can be hard to function when you are sleep deprived!

hugs & prayers,

lindajohnson said...

Hang in there it realy does get better. Savvanah had some of the same problems after the Glen.
All of of our love and prayers are with you all.
Love, Linda and Savannah

MaryandJeremy said...

We are so happy that you are all home together again! Man, when it rains, it pours...We are wishing that you will all be well again soon.
Mary and Jeremy

Likes Chocolate said...

Oh, I can so understand. We have been going through was this week. I can't seem to keep us. Our son has had diahrea and vomitting. All the dumb doc say is that it is a cold. He doesn't have a cold. He has some stomach virus. The poor thing is wasting away. His pants are starting to fall off. I am grumpy too. However, we are glad you are home. Hang in there. It does eventually get better